Blogs

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Times a tickin

Feeling pretty good, finally lol, surgery is 3 weeks today, thinking about it is making me feel emotional, not sure after all the surgeries I have had over my lifetime why this one is making me feel worried, so worried that I made a will. I think when the Dr said he had to move my organs around to get to my pelvic cavity, that’s what did it, the thought of that makes me nervous. I know I’m in great hands with my Dr, an incredible hospital will be taking care of me, I’m young and besides the comp…

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Diaries of the Chronically ill

Hi their, it’s been quite a week again, sometimes it feels like my blogs are always depressing but this wicked disease continues to hit bumps in the road, I just want smooth sailing for once?? A small bowel obstruction last week led me to a 4 day hospital stay on clear fluids and IV therapy! 48 hours after being discharged I was back in emergency passing a kidney stone, I’m home now resting after such an exciting week praying that my next mini vacation involves white sandy beaches!! Wishing you…

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Just another day in paradise

Well, been a bit since my last blog, feeling numb, frustrated, questioning my purpose in life!. I sat in the Drs office last week waiting for the results of my latest CT scan on my pelvic region not ready to hear what they had to say. The reason why my last surgery on my bumm was a complete fail, why all the healing fell apart was due to increased drainage, drainage that we felt would be stopped when all the sinus tracks in my bottom were removed, WRONG, CT showed my pelvic region is full of pus…

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2 months post op

Nov 21st I had multiple sinus tracks removed from my bottom and my bottom sewn shut, this is the 2nd attempt of trying to heal my bottom after a 22 year battle with these tracks. Just found out yesturday the surgery didn’t work again. I’m not quite sure how to feel about this. I spent 16 days this time in hospital, I just want this part of my life behind me, no pun intended. I’m off work, raising a little girl on my own, just applied for longterm disability, I pray I get it, sometimes I feel why…

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Prednisone

I wanted to blog about prednisone, the best drug ever for flare ups if you have UC or Crohns, the deadliest drug ever, long term side effects. I was on this drug for close to 8 years, the weight it puts on is incredible depending on your dosage of course. I was always a slender teen and when my doctor started me on it i put on 30 pounds. Keep in mind though when your weened off prednisone you lose all that extra looking weight. Furthermore, after surgery over the course of 8+ years my hearing st…

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Weekend

7 weeks post op and just had the most amazing 80's weekend in Southport. George behaved perfectly and I danced the weekend away. Plenty of music for all tastes. Even saw the real Bay City Rollers and Chesney Hawkes. Was a bit frightened that I over did it and hurting a bit today but so glad I went. I'm lucky to be alive and I'm so glad I am. Living with a temporary stoma has took its toll but it's head up and move on. At least I couldn't be in trouble for farting lol