Blogs

 Cats, Woman 61  Lower Edmonton London

Post lockdown outing

I have a prolapsed disk in my lower spine that needs surgery but for reasons I won’t go into now, surgery is deemed too risky. Because of this I was housebound long before lockdown. In the last few weeks I have become more mobile and today I went with my daughter to Waterstones the book store. I have missed it so much I ended up buying 8 books and this gave me reason to remember what I enjoy and am grateful for in life. I am grateful that I can afford to buy books and for the great enjoyment reading brings to my life. Came home to overactive Stoma but I just don’t care today. Stay well everyone

 Cats, Woman 61  Lower Edmonton London

It’s ok not to be ok

I am finding that people are always trying to encourage positivity and not really allowing room for when someone just wants to say I hate my stoma and what it has done to my life. You don’t always have to rescue me or make me feel better. What would make me feel better would be for people just to listen and allow space for all feelings good or bad. We all have bad days. Please allow them and don’t deny your feelings. It’s ok not to be ok. Repressed feelings will come out in some other way, sometimes in anger.

 MZ.DEVINE, Woman 45  Houston Texas

DEALING WITH THIS

This morning I received a sign.... I'm suppose to motivate people to live and thats what I'm going to do...I'm not going to go all godly but I will tell you this whatever religion you are dont question your second chance of breathing.... so what you pepe in a bag or poop in one...hell maybe both look down and see what color it is and know it's jus life.... jus think you could be worm food or jus a distant memory.... nope im going to put on my panties or not ‍♀️ And live to breath another day.... you determine who you are and what you will do better.... you can do whatever you want ... this bag or tube doesn't change you.... hell it jus gives you more strength cuz we have to be individuals to get up and deal with this (literally) ...everyday hour minute seconds..... hey so if you read this please tell me how you show your strength dealing with this change

 MZ.DEVINE, Woman 45  Houston Texas

Vent

SO I THOUGHT THIS SITE WOULD OPEN NEW SOCIAL ADVENTURES BUT I SEE NOW ITS NOT .... ITS REALLY BORING AND PEOPLE ON HERE ARE NOT AS FRIENDLY AND LIKE MINDED AS U THOUGHT THEY WOULD BE .... U TRY TO REACH OUT AND BE POSITIVE AND PEOPLE IGNORE YOU LIKE YOUR SOME WEIRDO. . NOT MENTION THIS SHITT IS DEPRESSING AS WELL NO ONE SEEMS TO BE LIVING THEIR LIFE TO THE FULLEST JUS COMPLAINING.... YOU HAVE AN OPPORTUNITY TO MEET PEOPLE AROUND THE WORLD GOING THRU WHAT YOUR GOING THRU AND IT JUST SEEMS NO ONE IS GIVING THE SITE A RUN FOR THEIR MONEY.... YOUR PAYING TO HAVE SOME SUPPORT TO UNDERSTAND THIS CHANGE WHY IN THE HELL ARE YOU NOT TAKING THIS AS A BLESSING?

 MZ.DEVINE, Woman 45  Houston Texas

JUS VENTING CAN YOU

Lately I have been trying to figure out my place in life... Its like I live a double life maybe even triple helll.... u can't let this group of people know of your differences you struggle with because they will treat you like an alien.... so pretend you're jus as strong as them Then on the other side you can't be to independent and happy because you will label as over doing it or XXTRA... because no one is that happy to have a shit bag .... Well I'm jus happy to be alive.... im glad to be able to jus enjoy my kids and grandchildren and mend broken bridges.... breathe enjoy life ups and downs... understand me . ... yes I'm very lonely because I want the right person to come in my life soooo I'm not rushing into relationships anymore and accept jus living me.... now I'm jus trying to help those thats like me jus so they can see the blessing not the curse of having a colostomy

 MZ.DEVINE, Woman 45  Houston Texas

Relationship

Is it jus me or does everyone have a trust issue when it comes to allowing someone to know about your colostomy.... well im not jus going to tell someone the weakest part of my life without them showing their worthy....I'm jus saying I would like them to know that this doesn't stop who I am ...I jus have to be more careful and super clean .... well I'm not going to give up hope on finding real love because its going to take a real man to love me anyway cuz im a handful ... I'm not going to allow.this obstacle to shut me down and make me another statistic for people to tally up as collateral damage hell...I didnt ask to be like this and im pretty sure its alot of people who can relate...look guys live your life and don't make this an handicap. Besides we live in the time of technology make it work for you

 Ohnonotagain, Man 50  Canton Ohio

First blog

Greetings fellow poopers.Im Michael I should have been already moved to Daytona Beach but this wonderful virus put a slight kink in my step so just enjoying living in the exciting metropolis of North Canton Ohio for now wink.I got crohns when i was 16 and they took my ilium out the next year.Ived had it for almost 35 years now and i would say the worst part of my surgery has been dealing with the depression and anxiety ive dealt with due to all the problems with absorbing nutrients and the proper vitamins.i just got on disability in March due to not being able to keep a job long enough to get health benefits.Ok thats enough whining from me lol .Hmu

 fpietrzak, Man 73  Greenville South Carolina

Ileostomy with high liquid output

I have an Ileostomy going on three years with high liquid output due to UC, my gastro doctor had me on Gattex which did nothing and extremely expensive, the output caused me to have high Creatinine levels due to dehydration. I just wanted to share this info, in March my family doctor said to try Tylenol 3 with codine and it has worked wonders, liquid turned into a more solid paste and my creatinine Came down from 2.8 to 1.6 with less dehydration, I just wanted to share this with all, it may help you.

Lockdown

Lockdown

How are we all coping with the lockdown I know quite a few of you may still be working but for me I’m not well at least it’s given me time to reflect get jobs done around the house never knew I had so much rubbish but then again can’t take it to the tip As they are not open I’m not a great range of books but I’m sure I’ll start of the second one that’s a first for me I am missionary football season ticket holder, don’t know when they will finish the season .Never use Facebook as much playing games and watching a lot of stuff on Netflix cannot wait to get back to work though as I as I drive all over the country picking cars up and delivering to garages and private homes hope you’re all keeping well

 MrMan365, Man 41  Gillingham Kent

Does anyone attend any Stoma Support groups?

Does anyone attend any Stoma Support groups?I attended my first one this week after months of feeling too anxious to go. But a huge thanks to Elliot for coming with me! I found it interesting so a thank you to the organisers, Tracey & Helen at MOGS.We are not alone with our daily struggles, pain, discomfort, adversities and general life difficulties. Some people have it worse than others and everyone copes differently. Some have a myriad of daily problems, health and non-health related. I have come to realise that communication really, really helps. Don’t hide and lock yourself away from family and friends. Don’t shy away from making new friends. You only fuel your anxiety and heighten depression.You will find you are not alone and there is strength in numbers. Human’s are social animals. Our success was built on that fact. Unite, support and encourage one another. You will find yourself cracking a smile that day despite only hours ago your Stoma was over active during a bag change…